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Patient support directories |
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Online directories that contain useful patient-orientated contact information and, in some cases, clinical summaries, relating to a variety of genetic conditions. |
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COVID-19 links for patients and their families
Provides links to many sources of support & information about coronavirus for patients and their relatives, including explanations of the science. |
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Contact
The Contact website containing a directory of conditions for patients and families. UK-based. Provides support-group contact details and brief clinical summaries for a range of genetic conditions | |
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MedlinePlus Genetics
USA (National Library of Medicine)-based website that is intended to be easy to read. It was previously known as Genetics Home Reference. |
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GeneReviews
May be more complex. Use the "Educational Materials" links. | |
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Unique ("Understanding Rare Chromosome and Gene Disorders")
Unique provides information and support to families and individuals affected by rare chromosome or genetic disorders and to the professionals who work with them. It assists such families and individuals in finding others affected by similar disorders. |
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Scottish Muscle Network
Select "Patient and Carers" or "Affiliations & Links" from the menu at the top left of the page. | |
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